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December, 2014


Patient access to complex chronic disease records on the Internet

Bartlett C et al, BMC Medical Informatics and Decision Making, 12(1)

Access to medical records on the Internet has been reported to be acceptable and popular with patients, although most published evaluations have been of primary care or office-based practice. We tested the feasibility and acceptability of making unscreened results and data from a complex chronic disease pathway (renal medicine) available to patients over the Internet in a project involving more than half of renal units in the UK.

Content and presentation of the Renal PatientView (RPV) system was developed with patient groups. It was designed to receive information from multiple local information systems and to require minimal extra work in units. After piloting in 4 centres in 2005 it was made available more widely. Opinions were sought from both patients who enrolled and from those who did not in a paper survey, and from staff in an electronic survey. Anonymous data on enrolments and usage were extracted from the webserver.
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Published: 16 August 2012 |
Keyword(s): Chronic Diseases, Identifier, Internet, Nephrology, Patient Record Access, UK, XML

Inviting patients to read their doctors’ notes: a quasi-experimental study and a look ahead

Delbanco T et al, Annals of internal medicine, 157(7)

Little information exists about what primary care physicians (PCPs) and patients experience if patients are invited to read their doctors’ office notes.

To evaluate the effect on doctors and patients of facilitating patient access to visit notes over secure Internet
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Published: 2 October 2012 |
Keyword(s): Communication, Confidentiality, Electronic Health Records, General practitioners, Internet, Patient Record Access, Physician-Patient Relationship, Primary Care, United States

Internet use by cancer patients: should oncologists ‘prescribe’ accurate web sites in combination with chemotherapy? A survey in a Spanish cohort

López-Gómez M et al, Annals of oncology, 23(6)

Cancer patients search for information about prognosis and treatment. Internet has become a major source of medical information. Its impact on oncology patients is not well known.
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Published: 22 November 2011 |
Keyword(s): Information prescription, Internet, Oncology, Spain

Physicians who use social media and other internet-based communication technologies

Cooper CP et al, J Am Med Inform Assoc, 2012

The demographic and practice-related characteristics of physicians who use social networking websites, portable devices to access the internet, email to communicate with patients, podcasts, widgets, RSS feeds, and blogging were investigated. Logistic regression was used to analyze a survey of US primary care physicians, pediatricians, obstetrician/gynecologists, and dermatologists (N=1750). Reported technology use during the last 6 months ranged from 80.6% using a portable device to access the internet to 12.9% writing a blog. The most consistent predictors of use were being male, being younger, and having teaching hospital privileges.
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Published: 25 May 2012 |
Keyword(s): Communication, Internet, Physicians, Social Media, United States

Using Internet Search Engines to Obtain Medical Information: A Comparative Study

Wang L et al, J Med Internet Res, 14(3)

The Internet has become one of the most important means to obtain health and medical information. It is often the first step in checking for basic information about a disease and its treatment. The search results are often useful to general users. Various search engines such as Google, Yahoo!, Bing, and Ask.com can play an important role in obtaining medical information for both medical professionals and lay people. However, the usability and effectiveness of various search engines for medical information have not been comprehensively compared and evaluated.
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Published: 16 May 2012 |
Keyword(s): Breast Cancer, Health Information, Internet, Medication information, Search, SNOMED CT, Usability

Are consumers of internet health information “cyberchondriacs”? Characteristics of 24,965 users of a depression screening site

Leykin Y et al, Depression and Anxiety, 29(1)

The number of individuals looking for health information on the Internet continues to expand. The purpose of this study was to understand the prevalence of major depression among English-speaking individuals worldwide looking for information on depression online.

An automated online Mood Screener website was created and advertised via Google AdWords, for 1 year. Participants (N = 24,965) completed a depression screening measure and received feedback based on their results. Participants were then invited to participate in a longitudinal mood screening study.
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Published: 16 June 2011 |
Keyword(s): Depression, Health Information, Internet, Telecare, Telemedicine, United States

A suggestion for future research on interface design of an internet-based telemedicine system for the elderly

Chuna YJ, Patterson PE. Work, 41(Suppl. 1)

Telemedicine has emerged as an effective tool for providing high quality healthcare service and health-related information, especially in rural areas. Rural areas often have a larger elderly population with greater rates of preventable disease. These areas also have fewer medical resources and specialists, and have limited access to health services, all of which can influence overall health. An internet-based telemedicine system can be one solution to provide the rural elderly with the proper health information when needed.
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Published: 6 February 2012 |
Keyword(s): Design, Elderly, Internet, Telemedicine, United States, Usability

Internet chemotherapy information: impact on patients and health professionals

Davies E, Yeoh K-W. Br J Cancer, 106(4)

Reliable information can improve patients’ knowledge of chemotherapy. As internet chemotherapy information (ICI) is increasingly viewed as a valuable patient education tool, we investigated the impact of ICI on patient care and analysed health professionals’ (HPs’) attitudes towards ICI.

The following questionnaires were distributed: (1) self-administered questionnaire randomly given to 261 patients receiving chemotherapy (80% returned); and (2) separate questionnaire given to 58 HPs at the same UK Oncology Centre (83% returned).
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Published: 19 January 2012 |
Keyword(s): Education, Internet, Nurses, Oncology, Patient, Physician, UK

An Internet-Based Virtual Coach to Promote Physical Activity Adherence in Overweight Adults: Randomized Controlled Trial

Watson A et al, J Med Internet Res, 14(1)

Addressing the obesity epidemic requires the development of effective, scalable interventions. Pedometers and Web-based programs are beneficial in increasing activity levels but might be enhanced by the addition of nonhuman coaching.

We hypothesized that a virtual coach would increase activity levels, via step count, in overweight or obese individuals beyond the effect observed using a pedometer and website alone.
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Published: 26 January 2012 |
Keyword(s): Internet, Monitoring, Obesity, Randomized Controlled Trials, Telemedicine, United States, Virtual Coach

Google Flu Trends: Correlation With Emergency Department Influenza Rates and Crowding Metrics

Dugas AF et al, Clinical Infectious Diseases, 2012

Google Flu Trends (GFT) is a novel Internet-based influenza surveillance system that uses search engine query data to estimate influenza activity and is available in near real time. This study assesses the temporal correlation of city GFT data to cases of influenza and standard crowding indices from an inner-city emergency department (ED).
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Published: 8 January 2012 |
Keyword(s): Emergency Department, Influenza, Internet, Surveillance, United States

Improving diabetes management with electronic health records and patients’ health records

Benhamou P-Y. Diabetes & Metabolism, 37S4

The lack of patient engagement and clinical inertia both contribute to suboptimal diabetes care. However, both obstacles are amenable to informatics- and Internet-based interventions. The use of electronic medical records (EMRs) is now established as being useful for improving diabetes care. Intelligent records that integrate computerized decision-support systems are now able to recommend care protocols tailored to risk levels. Web-based personal health record (PHR) systems, shared with healthcare providers, could also provide added value by promoting self-management of the behaviours related to diabetes. These Web-based programmes include patients’ access to EMRs, uploading of glucose monitoring results, a glucose diary, secure e-mail with providers, manual or automated feedback on blood glucose readings and other risk factors, an educational website, and an online diary for entering personal information on exercise, diet and medication.
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Published: December 2011 |
Keyword(s): Diabetes Mellitus, Electronic Health Records, France, Internet, Personal Health Records, Web

[New possibilities provided by the internet in medicine]

Meskó B, Dubecz A. Orvosi Hetilap, 148(44)

The importance of the internet and some new generation services of the web (so-called web 2.0) is exponentially growing. As web 2.0 is based on collaboration, feedback and communities, it can ease the work of physicians. The authors give a short overview of the web 2.0 tools created for physicians.
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Published: 4 November 2007 |
Keyword(s): Blog, Internet, Web 2.0, Wikipedia

Trust between patients and health websites: a review of the literature and derived outcomes from empirical studies

Vega LC et al, Health and Technology, 2011

With the exploding growth of the web, health websites have become a dominant force in the realm of health care. Technically savvy patients have been using the web not only to self inform but to self diagnose. In this paper we examine the trust relationship between humans and health websites by outlining the existing literature on trust in health websites. A total of 49 papers were examined using a meta-analytical framework.
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Published: 18 November 2011 |
Keyword(s): e-Health, Internet, Ontology, Review, Trust, Websites

[Health 2.0 for psychiatrists]

Hoekstra R. Tijdschrift Voor Psychiatrie, 53(10)

The internet used to be mainly ‘one-way traffic’ (1.0). Nowadays it is becoming easy for internet users to communicate with each other via the web (2.0).

To describe the concept of Health 2.0 and to explore the possibilities of 2.0-technology for psychiatry.
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Published: 2011 |
Keyword(s): Health 2.0, Information Technology, Internet, Netherlands, Psychiatry, Self Management

Educating the patient: challenges and opportunities with current technology

Gordon J. The Nursing Clinics of North America, 46(3)

Patients using the Internet are inundated with abundant information on health care that may be correct and may be incorrect. It is becoming the role of clinicians to enable patients to educate themselves by providing information about accurate and reliable Web sites, and to answer questions from literature that patients encounter.
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Published: September 2011 |
Keyword(s): e-Mail, Electronic Health Records, Health Information, Internet, Medical Informatics, Patient Education, Personal Health Records, Remote Consultation, Search Engines

Patient web portals to improve diabetes outcomes: a systematic review

Osborn CY et al, Current Diabetes Reports, 10(6)

Patient web portals (PWPs), defined as the integration of electronic medical records and patient health records, have been related to enhanced patient outcomes. A literature review was conducted to characterize the design and evaluation of PWPs to improve health care processes and outcomes in diabetes.
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Published: 2 October 2010 |
Keyword(s): Diabetes Mellitus, Disease Management, Electronic Health Records, Internet, patient portals, Self Care, United States

Twelve-month outcomes of an Internet-based diabetes self-management support program

Glasgow RE et al, Patient Education and Counseling, 2011

Internet-based programs offer potential for practical, cost-effective chronic illness self-management programs.

We report 12-month results of an Internet-based diabetes self-management program, with and without additional support, compared to enhanced usual care in a 3-arm practical randomized trial. Patients (n=463) were randomized: 77.3% completed 12-month follow-up. Primary outcomes were changes in health behaviors of healthy eating, physical activity, and medication taking. Secondary outcomes were hemoglobin A1c, body mass index, lipids, blood pressure, and psychosocial factors.
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Published: 15 September 2011 |
Keyword(s): Chronic Diseases, Diabetes Mellitus, Internet, Self Management, United States

The Patient-Doctor Relationship and Online Social Networks: Results of a National Survey

Bosslet GT et al, Journal of General Internal Medicine, 2011

The use of online social networks (OSNs) among physicians and physicians-in-training, the extent of patient-doctor interactions within OSNs, and attitudes among these groups toward use of OSNs is not well described.

To quantify the use of OSNs, patient interactions within OSNs, and attitudes toward OSNs among medical students (MS), resident physicians (RP), and practicing physicians (PP) in the United States.
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Published: 25 July 2011 |
Keyword(s): Internet, Physician-Patient Relationship, Social Networks, Survey, United States

Collective Health Intelligence: A Tool for Public Health

Marsh AJ et al, Future Visions on Biomedicine and Bioinformatics 1, 2011

Web 3.0 is fast approaching. The European Union Future Internet Assembly, the roadmap for the Web heading towards semantic interoperability and building on the UK’s adoption of the Internet and social media are accelerating this development. A number of health portals are opening, some with facilities for the capture of Patient Based Records. Collective Intelligence will be generated that, applied to health, has potential to support Public Health policy. By using the Internet, millions of people in the course of their daily activities contribute to uncertified data stores, some explicitly collaborating to create collective knowledge bases, some contributing implicitly through the patterns of their choices and actions.
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Published: 2011 |
Keyword(s): Health Information, Internet, Public Health, Semantic, Social Networks, UK, Web 2.0

Internet use, needs, and expectations of web-based information and communication in childbearing women with type 1 diabetes

Sparud-Lundin C et al, BMC Medical Informatics and Decision Making, 11(1)

In the childbearing period women use the internet both to seek information and as an important source of communication. For women with type 1 diabetes, pregnancy and early motherhood constitute a more complex situation than for women in general. This implies need for support from various professionals and a way of bridging any discontinuity in care would be to develop a website providing complementary social support and information. The objective of this study was to explore internet use, needs, and expectations regarding web-based information and communication in childbearing women with type 1 diabetes.
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Published: 7 July 2011 |
Keyword(s): Diabetes type 1, Health Information, Internet, Pregnancy, Sweden, Web

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