personal health records
Bashshur RL. Telemedicine journal and e-health, 19(5)
Recent and impendent changes resulting from the Health Information Technology for Economic and Clinical Health Act (HITECH) (part of Title XIII of the American Recovery and Reinvestment Act) of 2009 and the Patient Protection and Affordable Care Act (ACA) of 2011 offer unprecedented potential for telemedicine to play a significant role not only in reforming the current U.S. healthcare system but also in shaping innovative health systems of the future.
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Published:
5 February 2013 |
Keyword(s): ACO, e-Health, Electronic Health Records, Personal Health Records, Telemedicine, United States
Woods SS et al, J. Med. Internet Res., 15(3)
BACKGROUND:
Full sharing of the electronic health record with patients has been identified as an important opportunity to engage patients in their health and health care. The My HealtheVet Pilot, the initial personal health record of the US Department of Veterans Affairs, allowed patients and their delegates to view and download content in their electronic health record, including clinical notes, laboratory tests, and imaging reports.
OBJECTIVE:
A qualitative study with purposeful sampling sought to examine patients’ views and experiences with reading their health records, including their clinical notes, online.
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Published:
27 March 2013 |
Keyword(s): e-Health, Patient Participation, Patient Record Access, Personal Health Records
Agarwal R et al, Journal of medical Internet research, 15(2)
Background:
Personal health records (PHRs) are an important tool for empowering patients and stimulating health action. To date, the volitional adoption of publicly available PHRs by consumers has been low. This may be partly due to patient concerns about issues such as data security, accuracy of the clinical information stored in the PHR, and challenges with keeping the information updated. One potential solution to mitigate concerns about security, accuracy, and updating of information that may accelerate technology adoption is the provision of PHRs by employers where the PHR is pre-populated with patients’ health data. Increasingly, employers and payers are offering this technology to employees as a mechanism for greater patient engagement in health and well-being.
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Published:
26 February 2013 |
Keyword(s): Electronic Health Records, Messaging, Personal Health Records, United States
Krist AH et al, The Annals of Family Medicine, 10(4)
PURPOSE
Americans receive only one-half of recommended preventive services. Information technologies have been advocated to engage patients. We tested the effectiveness of an interactive preventive health record (IPHR) that links patients to their clinician’s record, explains information in lay language, displays tailored recommendations and educational resources, and generates reminders.
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Published:
July 2012 |
Keyword(s): Electronic Health Records, Health Promotion, Informatics, Information Management, Patient Centric, Personal Health Records, Preventive Care, Primary Health Care, United States
Fuji K et al, Health and Technology, 2012
Personal health records (PHRs) are electronic tools for patients to maintain a comprehensive record of their health information. Despite the potential for PHRs to increase patient involvement in their overall health care and lead to shared decision-making with their health care providers, only 11 % of consumers in the United States maintain a PHR. The purpose of this study is to evaluate how standalone PHRs address the reported desires of patients. An Internet search identified nineteen web-based standalone PHRs that were available free-of-charge. A literature search was conducted to identify patient-reported desires for a PHR. A checklist was constructed with an evaluation procedure to assess the presence of functionalities within each standalone PHR that met identified patient desires.
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Published:
7 June 2012 |
Keyword(s): Electronic Health Records, Patient, Personal Health Records, United States
O’Donnell HC et al, Journal of general internal medicine, 26(9)
BACKGROUND
Health information exchange (HIE), the electronic transmission of patient medical information across healthcare institutions, is on the forefront of the national agenda for healthcare reform. As healthcare consumers are critical participants in HIE, understanding their attitudes toward HIE is essential.
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Published:
17 May 2011 |
Keyword(s): Consumer, Electronic Health Records, Health Information Exchange, Medical Informatics, Personal Health Records, United States
Wuyts K et al, Health and Technology, 2012
The advent of Web 2.0 has resulted in the emergence of a new generation of user-centric applications. Healthcare too follows this trend and a whole range of health-related applications are being introduced. Electronic health record (EHR) systems are being developed to enable electronic storing and sharing of medical data between health practitioners. Recently, initial steps have been taken to evolve toward cross-border sharing of EHR data. Patients also become more involved in their healthcare and start storing their health data online in personal health record (PHR) systems or look for online support and medical advice from other patients with similar diseases or treatments. The consolidation of these different systems is described as a promising approach to bring healthcare to a higher level.
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Published:
16 May 2012 |
Keyword(s): e-Health, Electronic Health Records, Empowerment, Personal Health Records, Privacy, Taxonomy, Web 2.0
Weitzman ER et al, BMC medical informatics and decision making, 12(1)
BACKGROUND:
Data stored in personally controlled health records (PCHRs) may hold value for clinicians and public health entities, if patients and their families will share them. We sought to characterize consumer willingness and unwillingness (reticence) to share PCHR data across health topics, and with different stakeholders, to advance understanding of this issue. METHODS: Cross-sectional 2009 Web survey of repeat PCHR users who were patients over 18 years old or parents of patients, to assess willingness to share their PCHR data with an-out-of-hospital provider to support care, and the state/local public health authority to support monitoring; the odds of reticence to share PCHR information about ten exemplary health topics were estimated using a repeated measures approach.
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Published:
22 May 2012 |
Keyword(s): Data Sharing, Electronic Health Records, Personal Health Records, Public Health, Trust, United States
Schnipper JL et al, J Am Med Inform Assoc, 2012
Objective
To determine the effects of a personal health record (PHR)-linked medications module on medication accuracy and safety.
Design
From September 2005 to March 2007, we conducted an on-treatment sub-study within a cluster-randomized trial involving 11 primary care practices that used the same PHR. Intervention practices received access to a medications module prompting patients to review their documented medications and identify discrepancies, generating ‘eJournals’ that enabled rapid updating of medication lists during subsequent clinical visits.
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Published:
3 May 2012 |
Keyword(s): Accuracy, Electronic Health Records, Medication Errors, Medication Safety, Personal Health Records, United States
Li YC et al, Yearbook of Medical Informatics, 2009(1)
OBJECTIVE
Increasing patient demand for convenient access to their own healthcare data has led to more personal use of the Electronic Health Record (EHR). With “consumer empowerment” being an important issue of EHR, we are seeing a more “patient-centric” approach of EHR from countries around the world. Researchers have reported on issues in EHR sharing including concerns on privacy and security, consumer empowerment, competition among providers, and content standards. This study attempts to analyze prior research and to synthesize comprehensive, empirically-based conceptual models of EHR for personal use.
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Published:
2009 |
Keyword(s): Electronic Health Records, Empowerment, Patient Record Access, Personal Health Records
Ross SE et al, J Med Internet Res, 13(3)
BACKGROUND
Adverse drug events are a major safety issue in ambulatory care. Improving medication self-management could reduce these adverse events. Researchers have developed medication applications for tethered personal health records (PHRs), but little has been reported about medication applications for interoperable PHRs.
OBJECTIVE
Our objective was to develop two complementary personal health applications on a common PHR platform: one to assist children with complex health needs (MyMediHealth), and one to assist older adults in care transitions (Colorado Care Tablet).
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Published:
12 July 2011 |
Keyword(s): Adverse Drug Events, Disease Management, Electronic Health Records, Medication Adherence, Personal Health Records, Self Management, United States
Wright A et al, Journal of General Internal Medicine, 27(1)
BACKGROUND
Provider and patient reminders can be effective in increasing rates of preventive screenings and vaccinations. However, the effect of patient-directed electronic reminders is understudied.
OBJECTIVE
To determine whether providing reminders directly to patients via an electronic Personal Health Record (PHR) improved adherence to care recommendations.
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Published:
9 September 2011 |
Keyword(s): Alerts and Reminders, Clinical decision support, Electronic Health Records, Personal Health Records, Preventive Care, Randomized Controlled Trials, United States
Wagner PJ et al, J Am Med Inform Assoc, 2012
Purpose
To examine the impact of a personal health record (PHR) in patients with hypertension measured by changes in biological outcomes, patient empowerment, patient perception of quality of care, and use of medical services.
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Published:
10 January 2012 |
Keyword(s): Electronic Health Records, Hypertension, Patient Empowerment, Personal Health Records, Quality of Health Care, United States
Haggstrom DA et al, J Am Med Inform Assoc, 18 Suppl 1
In order to create user-centered design information to guide the development of personal health records (PHRs), 24 patients participated in usability assessments of VA’s MyHealtheVet program. Observational videos and efficiency measures were collected among users performing four PHR scenarios: registration and log-in, prescription refill, tracking health, and searching for health information. Twenty-five percent of users successfully completed registration. Individuals preferred prescription numbers over names, sometimes due to privacy concerns.
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Published:
8 October 2011 |
Keyword(s): Electronic Health Records, Patient Record Access, Personal Health Records, United States, Usability, Veterans Affairs
Blanson Henkemans OA et al, Gerontechnology, 10(3)
Objective
Contribute to understanding of determinants of attrition in Randomized Controlled Trials (RCTs) on eHealth services for self-care and to developing a strategy to attend to them.
Background
RCTs are considered the “gold standard” in empirical research on medical interventions. However, RCTs of eHealth services for self-care are often faced with Eysenbach’s Law of Attrition; that is, the phenomenon of people dropping out of the study early or being unavailable for follow-up studies.
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Published:
2011 |
Keyword(s): Care, Personal Health Records, Randomized Controlled Trials, Self Care
Benhamou P-Y. Diabetes & Metabolism, 37S4
The lack of patient engagement and clinical inertia both contribute to suboptimal diabetes care. However, both obstacles are amenable to informatics- and Internet-based interventions. The use of electronic medical records (EMRs) is now established as being useful for improving diabetes care. Intelligent records that integrate computerized decision-support systems are now able to recommend care protocols tailored to risk levels. Web-based personal health record (PHR) systems, shared with healthcare providers, could also provide added value by promoting self-management of the behaviours related to diabetes. These Web-based programmes include patients’ access to EMRs, uploading of glucose monitoring results, a glucose diary, secure e-mail with providers, manual or automated feedback on blood glucose readings and other risk factors, an educational website, and an online diary for entering personal information on exercise, diet and medication.
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Published:
December 2011 |
Keyword(s): Diabetes Mellitus, Electronic Health Records, France, Internet, Personal Health Records, Web
Kim J et al, Healthcare Informatics Research, 17(1)
OBJECTIVES
The purpose of this study was to review history and trends of personal health record research in PubMed and to provide accurate understanding and categorical analysis of expert opinions.
METHODS
For the search strategy, PubMed was queried for ‘personal health record, personal record, and PHR’ in the title and abstract fields. Those containing different definitions of the word were removed by one-by-one analysis from the results, 695 articles. In the end, total of 229 articles were analyzed in this research.
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Published:
31 March 2011 |
Keyword(s): Electronic Health Records, Personal Health Records, Research
Zulman DM et al, Annals of Internal Medicine, 155(12)
Background:
Electronic personal health record (PHR) systems are proliferating but largely have not realized their potential for enhancing communication among patients and their network of care providers.
Objective:
To explore preferences about sharing electronic health information among users of the U.S. Department of Veterans Affairs (VA) PHR system, My HealtheVet.
Design:
Web-based survey of a convenience sample.
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Published:
20 December 2011 |
Keyword(s): Electronic Health Records, Personal Health Records, Record Sharing, Survey, United States, Veterans Affairs
Kim J, Bates DW. J Med Internet Res, 13(4)
BACKGROUND
Personal health records (PHRs) remain a relatively new technology and concept in practice even though they have been discussed in the literature for more than 50 years. There is no consensus on the definition of a PHR or PHR system even within the professional societies of health information technology.
OBJECTIVE
Our objective was to analyze and classify the opinions of health information professionals regarding the definitions of the PHR.
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Published:
29 November 2011 |
Keyword(s): Personal Health Records, RA Definitions, Self Efficacy
Krist AH et al, BMC Medical Informatics and Decision Making, 11(1)
Background
Evidence-based preventive services offer profound health benefits, yet Americans receive only half of indicated care. A variety of government and specialty society policy initiatives are promoting the adoption of information technologies to engage patients in their care, such as personal health records, but current systems may not utilize the technology’s full potential.
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Published:
24 November 2011 |
Keyword(s): Electronic Health Records, Personal Health Records, Preventive Care, United States, Usability
