registries
Fleurant M et al, Health Affairs, 30(7)
The ability to generate and use registries-lists of patients with specific conditions, medications, or test results-is considered a measure of physicians’ engagement with electronic health record systems and a proxy for high-quality health care. We conducted a pre-post survey of registry capability among physicians participating in the Massachusetts eHealth Collaborative, a four-year, $50 million health information technology program.
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Published:
July 2011 |
Keyword(s): Diabetes Mellitus, e-Health, Electronic Health Records, Registries, United States
Resnic FS et al, JAMA, 304(18)
Context
Ensuring the safety of medical devices challenges current surveillance approaches, which rely heavily on voluntary reporting of adverse events. Automated surveillance of clinical registries may provide early warnings in the postmarket evaluation of medical device safety. Objective To determine whether automated safety surveillance of clinical registries using a computerized tool can provide early warnings regarding the safety of new cardiovascular devices.
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Published:
10 November 2010 |
Keyword(s): Cardiovascular, Devices, Registries, Safety, Surveillance, United States
Navaneethan SD et al, Clinical Journal of the American Society of Nephrology, 2010
Background and objectives:
Chronic kidney disease (CKD) is increasing, and outcomes-related research from diverse health care settings is needed to target appropriate efforts and interventions. We developed an electronic health record (EHR)-based CKD registry at the Cleveland Clinic and validated comorbid conditions.
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Published:
4 November 2010 |
Keyword(s): Electronic Health Records, Kidney Diseases, Nephrology, Registries, United States
Manuel DG ert al, BMJ, 341
Disease registries and similar databases have facilitated epidemiological studies that contribute to our understanding of the natural course of disease and the value of medical and surgical interventions. These data have also allowed us to study the performance of health care, including patient safety and quality of care. However, there is an increasing possibility of inaccurate results arising from a shift in the type of data used to identify people with chronic diseases. In the past, registries for cancer and other diseases were laboriously created using active reporting from individual clinical records.
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Published:
19 August 2010 |
Keyword(s): Chronic Diseases, Classification, Electronic Health Records, Registries, Research
Bates, David W., and Asaf Bitton, Health Affairs, 29(4)
Most electronic health records today need further development of features that patient-centered medical homes require to improve their efficiency, quality, and safety. We propose a road map of the domains that need to be addressed to achieve these results. We believe that the development of electronic health records will be critical in seven major areas: telehealth, measurement of quality and efficiency, care transitions, personal health records, and, most important, registries, team care, and clinical decision support for chronic diseases.
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Published:
1 April 2010 |
Keyword(s): Electronic Health Records, Health Information Technology, Medical Home, Patient Centric, Primary Care, Quality of Health Care, Registries, Telemedicine, United States
Backus, Lisa I. et al, J Am Med Inform Assoc, 16(6)
The Department of Veterans Affairs (VA) has a system-wide, patient-centric electronic medical record system (EMR) within which the authors developed the Clinical Case Registries (CCR) to support population-centric delivery and evaluation of VA medical care. To date, the authors have applied the CCR to populations with human immunodeficiency virus (HIV) and hepatitis C virus (HCV).
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Published:
November 2009 |
Keyword(s): Clinical Case Registries, Electronic Medical Records, HCV, HIV, Patient Centric, Registries, United States
Wright, Adam et al, J Med Internet Res, 11(3)
Background:
The ability to generate registries of patients with particular clinical attributes, such as diagnoses or medications taken, is central to measuring and improving the quality of health care. However, it is not known how many providers have the ability to generate such registries.
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Published:
10 August 2009 |
Keyword(s): Chronic Diseases, Electronic Health Records, Family Practice, Health Care, Hospital Information Systems, Patient, Primary Care, Registries, United States
Platt, Richard et al, N Engl J Med, 361(7)
In 2007, Congress directed the Food and Drug Administration (FDA) to create a new postmarketing surveillance system that will, by 2012, be using electronic health data from 100 million people to prospectively monitor the safety of marketed medical products. This new system is intended to complement existing systems of “spontaneous” adverse-event reporting. In May 2008, the FDA announced the Sentinel Initiative, which would “access the capabilities of multiple, existing data systems (i.e., electronic health record systems, medical claims databases).”
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Published:
27 July 2009 |
Keyword(s): Distributed Data Network, Electronic Medical Records, FDA, Medical Product Safety, Prescription Databases, Registries, Safety, Secondary Data Use, Surveillance, United States
Anderson, Howard J., Health Data Management, 17(1)
“Delivering the right data to the right doctor at the right time can have a big impact on the quality of care.
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Published:
1 January 2009 |
Keyword(s): Chronic Diseases, Information Dissemination, Preventive Medicine, Quality of Health Care, Registries, Reminder Systems, United States
Buyl, Ronald, and Marc Nyssen, eHealth Beyond the Horizon - Get IT There
This paper describes the results of the KINELECTRICS project. Since more and more clinical documents are stored and transmitted in an electronic way, the aim of this project was to design an electronic version of the registry that contains all acts of physiotherapists. The solution we present here, not only meets all legal constraints, but also enables to verify the traceability and inalterability of the generated documents, by means of SHA-256 codes.
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Published:
2008 |
Keyword(s): Belgium, Database Management Systems, Electronic Health Records, Hospital Information Systems, Physical Therapy, Registries, Security, Software, Systems Integration
Steen, Patricia M. et al, Journal of Public Health Management and Practice, 14(6)
Background:
The ability to use the Internet as a reporting tool has created important and timely changes in the way registries all over the world can collect data. This article provides a detailed description of the implementation that converted reporting hospitals in New York State from a manual, paper-based reporting system to an electronic, Web-based case reporting and communication system. The system usage was analyzed and the results are presented.
Methods: The implementation process of the Web-based reporting and communication system included several steps: system introduction and orientation, system pilot testing, statewide campaign for implementation on a voluntary basis, statewide campaign for implementation on a mandatory basis, and system support and training.
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Published:
November 2008 |
Keyword(s): Hospitals, Internet, Registries, Reporting, United States, Web Based Communication
Popovich, Michael L. et al, Medical and Care Compunetics 5, 2008
Despite the promise of better health care through information-centric patient empowerment, little progress has been made. The issue is not that the data do not exist in a useable form, nor that technologies are lacking that would enable access to this information. There are two primary challenges standing in the way of patient empowerment: (1) in the private sector there is no proven revenue model for providing this access and (2) in the public sector the standard argument is confidentiality of information.
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Published:
June 2008 |
Keyword(s): Electronic Health Records, Immunization, Internet, Patient Record Access, Registries, United States
