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April, 2014
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social networks

Use of collaboration techniques and classification algorithms in personal healthcare

Trajkovik V et al, Health and Technology, 2012

Adoption of mobile devices and technology in the field of medical monitoring and personal health care systems is very important nowadays, especially when it comes to certain categories of people with chronicle diseases who need 24 hour access to medical care. The collaborative Information system model we present in this paper, gives a new dimension in the usage of novel technologies in healthcare. Using mobile, web and broadband technologies enable the citizens to have ubiquity of support services where ever they may be.
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Published: 2 February 2012 |
Keyword(s): Algorithms, Classification, mHealth, Personal Health Systems, Social Networks

Features of Mobile Diabetes Applications: Review of the Literature and Analysis of Current Applications Compared Against Evidence-Based Guidelines

Chomutare T et al, J Med Internet Res, 13(3)

Background:
Interest in mobile health (mHealth) applications for self-management of diabetes is growing. In July 2009, we found 60 diabetes applications on iTunes for iPhone; by February 2011 the number had increased by more than 400% to 260. Other mobile platforms reflect a similar trend. Despite the growth, research on both the design and the use of diabetes mHealth applications is scarce. Furthermore, the potential influence of social media on diabetes mHealth applications is largely unexplored.
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Published: 22 September 2011 |
Keyword(s): Diabetes Mellitus, Education, Electronic Health Records, mHealth, Personal Health Records, Self Management, Self-monitoring, Social Networks

Variations in Structure and Content of Online Social Networks for Patients With Diabetes

Shrank WH et al, Arch Intern Med, 171(17)

With the exponential growth of Facebook and other social networking sites, patients are increasingly seeking information and emotional support online, from other patients. Recent qualitative studies highlight the great potential that online social networks represent as a source of information and encouragement in chronic disease management. However, recent research has also identified potential pitfalls in these unregulated sites.
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Published: 26 September 2011 |
Keyword(s): Diabetes Mellitus, Social Networks, United States

The Patient-Doctor Relationship and Online Social Networks: Results of a National Survey

Bosslet GT et al, Journal of General Internal Medicine, 2011

BACKGROUND:
The use of online social networks (OSNs) among physicians and physicians-in-training, the extent of patient-doctor interactions within OSNs, and attitudes among these groups toward use of OSNs is not well described.

OBJECTIVE:
To quantify the use of OSNs, patient interactions within OSNs, and attitudes toward OSNs among medical students (MS), resident physicians (RP), and practicing physicians (PP) in the United States.
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Published: 25 July 2011 |
Keyword(s): Internet, Physician-Patient Relationship, Social Networks, Survey, United States

PatientsLikeMe and the tale of three brothers

Trevena LJ. The Medical Journal of Australia, 195

In 2004, Ben and Jamie Heywood launched a social networking site called PatientsLikeMe (PLM) (http://www.patientslikeme.com). They were motivated by their younger brother Stephen’s tragic journey with amyotrophic lateral sclerosis (ALS) and the desire to connect and share information with other ALS sufferers. Members of the PLM community create a profile to record and track their health over time, including quality of life, symptom control, and treatments and their efficacy and side effects. Members can also connect through online discussion, and the site has over 110 000 members with a counter on the homepage rising every few minutes.
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Published: 5 September 2011 |
Keyword(s): Online Communities, Patients, Social Media, Social Networks

Collective Health Intelligence: A Tool for Public Health

Marsh AJ et al, Future Visions on Biomedicine and Bioinformatics 1, 2011

Web 3.0 is fast approaching. The European Union Future Internet Assembly, the roadmap for the Web heading towards semantic interoperability and building on the UK’s adoption of the Internet and social media are accelerating this development. A number of health portals are opening, some with facilities for the capture of Patient Based Records. Collective Intelligence will be generated that, applied to health, has potential to support Public Health policy. By using the Internet, millions of people in the course of their daily activities contribute to uncertified data stores, some explicitly collaborating to create collective knowledge bases, some contributing implicitly through the patterns of their choices and actions.
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Published: 2011 |
Keyword(s): Health Information, Internet, Public Health, Semantic, Social Networks, UK, Web 2.0

Electronic Communication and Medical Research: Beyond the Record

Brandom BW. Mayo Clinic Proceedings, 86(9)

In the current issue of Mayo Clinic Proceedings, Tweet et al describe a novel solution to a perpetual problem that clinical researchers must address: How can researchers effectively and ethically identify and recruit adequate numbers of research participants, particularly if the research protocol involves participants having a rare condition? Absent such recruitment, a study will fail.
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Published: September 2011 |
Keyword(s): Orphan Disease, Research, Social Networks, United States

Spontaneous Coronary Artery Dissection: A Disease-Specific, Social Networking Community–Initiated Study

Tweet MS et al, Mayo Clinic Proceedings, 86(9)

OBJECTIVE:
To develop and assess the feasibility of a novel method for identification, recruitment, and retrospective and prospective evaluation of patients with rare conditions.
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Published: September 2011 |
Keyword(s): Electronic Health Records, Orphan Disease, Social Networks, United States

Computer-assisted update of a consumer health vocabulary through mining of social network data

Doing-Harris KM, Zeng-Treitler Q. J Med Internet Res, 13(2)

BACKGROUND
Consumer health vocabularies (CHVs) have been developed to aid consumer health informatics applications. This purpose is best served if the vocabulary evolves with consumers’ language.

OBJECTIVE
Our objective was to create a computer assisted update (CAU) system that works with live corpora to identify new candidate terms for inclusion in the open access and collaborative (OAC) CHV.
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Published: 17 May 2011 |
Keyword(s): Consumer Health Information, Data Mining, NLP, Social Networks, Vocabulary

Sharing Data for Public Health Research by Members of an International Online Diabetes Social Network

Weitzman ER et al, PLoS ONE, 6(4)

Surveillance and response to diabetes may be accelerated through engaging online diabetes social networks (SNs) in consented research. We tested the willingness of an online diabetes community to share data for public health research by providing members with a privacy-preserving social networking software application for rapid temporal-geographic surveillance of glycemic control.
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Published: 27 April 2011 |
Keyword(s): Data Sharing, Diabetes Mellitus, Online Communities, Social Networks, Surveillance

Facebook friend request from a patient?

Devi S. The Lancet, 377(9772)

Widespread use of new technologies such as social networking sites are creating ethical problems for physicians that some doctors’ organisations are beginning to address. Sharmila Devi reports.
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Published: 2 April 2011 |
Keyword(s): Confidentiality, Ethics, facebook, Physicians, Social Media, Social Networks

Social but safe? Quality and safety of diabetes-related online social networks

Weitzman ER et al, J Am Med Inform Assoc, 18(3)

Objective
To foster informed decision-making about health social networking (SN) by patients and clinicians, the authors evaluated the quality/safety of SN sites’ policies and practices. Design Multisite structured observation of diabetes-focused SN sites.

Measurements
28 indicators of quality and safety covering: (1) alignment of content with diabetes science and clinical practice recommendations; (2) safety practices for auditing content, supporting transparency and moderation; (3) accessibility of privacy policies and the communication and control of privacy risks; and (4) centralized sharing of member data and member control over sharing.
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Published: 24 January 2011 |
Keyword(s): Decision Making, Diabetes Mellitus, Safety, Social Networks, United States, Website quality

Use of electronic clinical documentation: time spent and team interactions

Hripcsak G et al, J Am Med Inform Assoc, 2011

Objective
To measure the time spent authoring and viewing documentation and to study patterns of usage in healthcare practice.

Design
Audit logs for an electronic health record were used to calculate rates, and social network analysis was applied to ascertain usage patterns. Subjects comprised all care providers at an urban academic medical center who authored or viewed electronic documentation.

Measurement
Rate and time of authoring and viewing clinical documentation, and associations among users were measured.
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Published: 2 February 2011 |
Keyword(s): Audit logs, Electronic Health Records, Social Networks, United States, Usage

Case Study: An Ethics Case Study of HIV Prevention Research on Facebook: The Just/Us Study

Bull SS et al, Journal of Pediatric Psychology, 2011

OBJECTIVE:
To consider issues related to research with youth on social networking sites online.

METHODS:
Description of the data collection process from 1,588 participants in a randomized controlled trial testing the efficacy of HIV prevention education delivered on Facebook. Using respondent-driven sampling, staff-recruited participants are encouraged to recruit up to three friends to enroll in the study.
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Published: 3 February 2011 |
Keyword(s): Behaviour, Confidentiality, Consent, Ethics, facebook, HIV, Research, Security, Social Networks

Seeking Support on Facebook: A Content Analysis of Breast Cancer Groups

Bender JL et al, J Med Internet Res, 13(1)

Background:
Social network sites have been growing in popularity across broad segments of Internet users, and are a convenient means to exchange information and support. Research on their use for health-related purposes is limited.

Objective:
This study aimed to characterize the purpose, use, and creators of Facebook groups related to breast cancer.
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Published: 4 February 2011 |
Keyword(s): Breast Cancer, facebook, Internet, Online Communities, Social Networks

Social Media and the Health System

Eytan T et al, The Permanente Journal, 15(1)

As early as 1960, Sidney Garfield, MD, the co-founder of Kaiser Permanente (KP), foresaw how computers would become powerful tools to help patients. It is in his maverick spirit that we examine the potential for social media to be powerful tools to help our patients today. Social media, or content created and exchanged within virtual communities through the use of online tools, are used by millions of people to converse and to connect.
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Published: January 2011 |
Keyword(s): Kaiser Permanente, Knowledge dissemination, Social Media, Social Networks, Trust

Sharing access might increase engagement

Wicks P. BMJ, 341

Greenhalgh and colleagues report that HealthSpace fails to engage patients. At PatientsLikeMe we sought to maximise engagement by first building online communities for patients without effective treatments (for example, patients with amyotrophic lateral sclerosis), where symptoms are complex and quality of life is impaired (for example, multiple sclerosis), and where patients don’t know other patients with their condition (for example, epilepsy).
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Published: 20 December 2010 |
Keyword(s): Electronic Health Records, Personal Health Records, Social Networks

Protected health information on social networking sites: ethical and legal considerations

Thompson LA et al, J Med Internet Res, 13(1)

Background:
Social networking site use is increasingly common among emerging medical professionals, with medical schools even reporting disciplinary student expulsion. Medical professionals who use social networking sites have unique responsibilities since their postings could violate patient privacy. However, it is unknown whether students and residents portray protected health information and under what circumstances or contexts.
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Published: 19 January 2011 |
Keyword(s): Ethics, facebook, Internet, Legal, Privacy, Protected Health Information, Social Networks, Students, United States

Potential for Electronic Health Records and Online Social Networking to Redefine Medical Research

Pearson JF et al, Clinical Chemistry, 2010

BACKGROUND:
Recent legislation in the US requires that all medical records become electronic over the next decade. In addition, ongoing developments in patient-oriented care, most notably with the advent of health social networking and personal health records, provide a plethora of new information sources for research.
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Published: 15 December 2010 |
Keyword(s): Electronic Health Records, Online, Research, Social Networks, United States

Online Social Networking by Patients with Diabetes: A Qualitative Evaluation of Communication with Facebook

Greene JA et al, Journal of General Internal Medicine, 26(3)

BACKGROUND:
Several disease-specific information exchanges now exist on Facebook and other online social networking sites. These new sources of knowledge, support, and engagement have become important for patients living with chronic disease, yet the quality and content of the information provided in these digital arenas are poorly understood.
[ More ]

Published: 13 October 2010 |
Keyword(s): Communication, Diabetes Mellitus, Disease Management, facebook, Online, Social Media, Social Networks, United States

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